tag:blogger.com,1999:blog-7511121444223942732.post4349801214915848594..comments2023-05-26T09:25:42.171-04:00Comments on Lea's Gluten Free: Intravenous Iron InfusionsLea Rayhttp://www.blogger.com/profile/05775673266098420603noreply@blogger.comBlogger67125tag:blogger.com,1999:blog-7511121444223942732.post-6031353390759326542014-12-07T19:02:41.606-05:002014-12-07T19:02:41.606-05:00Hello everyone,
My Doctor tried to get my Health I...Hello everyone,<br />My Doctor tried to get my Health Insurance to approve Iron IV. And they denied because there is an exclusion in my policy if anything is caused by my gastric-by-pass it is not covered. I can't afford to pay for infusions out of pocket, its thousands, I also have CML Leukemia. Does anyone know of any foundations that would pay for my Iron Infusions? I would be so thankful, I am tired and weak all the time, I don't feel my self. Its horrible and hard to explain.My Viewhttps://www.blogger.com/profile/09220439289621906592noreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-69761650523515526592013-07-29T22:37:39.780-04:002013-07-29T22:37:39.780-04:00July 2013
I have this treatment every 3 mos. If I...July 2013<br />I have this treatment every 3 mos. If I don't my body starts using up by RBC supply and my H/H starts to get critical. I don't want that to start happening because I end up getting blood transfusions and I would rather have the In-Fen (iron) infusions. My day starts at 8AM and I'm usually out by 3PM. They give you bendaryl first and zanex then you get a 10ml dose to see if you will have a reaction. If all is well then they hang the bag. I usually sleep right thru and the nurses keep a really good eye on you. I have been having these treatments for about 2 yrs. I'm fixen to go another route and hope that the problem I have can be fixed and then I want have to have the Iron.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-36502247402787776132012-05-22T20:41:52.852-04:002012-05-22T20:41:52.852-04:00I was recently diagnosed with anemia which I have ...I was recently diagnosed with anemia which I have probably had for the last 20 years from heavy menstruation. My ferritin levels were at 7. I had my first infusion of iron dextran last week and no allergic reaction and minimal side effects. I mostly just had extreme fatigue for 24hrs. I also didn't want the entire dose in one sitting so I had them only give me 500mg and I will come back a week later for the remainder of the dose.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-22869404448640052952012-05-09T17:03:12.680-04:002012-05-09T17:03:12.680-04:00Thanks to you all for sharing your experiences. I ...Thanks to you all for sharing your experiences. I was just diagnosed with Celiac Disease recently after a year and a half of severe iron deficient anemia. We now know that is due to malabsorption because of the damage in my small intestine. I'll be going to the doctor on Thursday next week and we'll be discussing IV iron infusions and now I feel better informed. Just curious about the price of the 'real' iron that insurance will not pay for until you've tried the synthetic that seems to cause so many serious issues? Also, is the 'real' iron gluten free? Thanks for any information.Alyson Wissingernoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-12593358710182772372012-04-30T13:43:41.295-04:002012-04-30T13:43:41.295-04:00I have been searching everywhere on information ab...I have been searching everywhere on information about iron infussions. Two weeks ago I went in for a iron infussion......I was told that because of the cost the insurance company requires synthetic iron first....well I was settled in and the started with the cocktail of benedryl and steriods I was fine then as soon as the predose started gong in my vein I felt my chest tighten up I told my husband to get me some help then my airway begin to close several people around me started yelling for me some help ,. My husband said I turned red then blue. My body went into convulsions and I had the worst ain you could ever imagine in my lower back and pains shooting straight down my legs. The nurses and my doctor was there and after awhile it all started to ease up. I felt very weak and I just wanted to go home. 3days later I woke up to get ready for work and I could not stand up I had the worst pain in my right hip area. I went to my primary doctor and he put me right into the hospital te did a CAT scan, MRI, x-rays and ultrasound.....to try to rule out internal organ problems. After two days they determined it was musclular and sent me home. The pain took about a week to finally go away. My hemotologist called me and sad I really need you to come back and have the infusion of real iron......I am so scared. I do not want to go through this again. But I need it really bad. I had astri bypass in 2005 and I can't absorb the pill from I am very tried and depressed all the time. I work 52+ hours a week and it's so hard. I just want to stay in bed all the time. I am normally a happy outgoing person but the last 5 years I am withdrawn and lonely. I can't think straight at work and can not afford to lose my job. Can someone please help me.....please I am so scared. I want to feel better but I do not want to die from the iron.Cindy64https://www.blogger.com/profile/15875577932997764258noreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-63270954109237345612012-03-08T20:21:37.602-05:002012-03-08T20:21:37.602-05:00My iron level was 2 and hemoglobin 7. Doctor diagn...My iron level was 2 and hemoglobin 7. Doctor diagnosed me as severe iron deficiency anemia. Funny, I am over 40, was diagnosed in my early 20's, but since then no doctor ever mentioned low iron or hemoglobin and never recommended treatment. I have had 2 iron infusions so far, scheduled for once weekly for 10 weeks. Luckily, no side effects and hemoglobin already increased to 8, so looks like its working. Just make sure to get the test dose, and ask them to run it slower. The nurse told me its suppose to be 15 - 20 minutes, but I insisted on slower infusions since I am sensitive to a lot of drugs and other things. They run it over 40 minutes and I do just fine. <br /><br />It sounds like such a simple thing, low iron, but it can cause serious effects on lifestyle. I was for a very long time low energy, have to rest after walking a few blocks due to shortness of breath, difficulty with memory and just plain tired all the time. I am glad for these infusions and glad I finally have a doctor who takes it seriously and informs me of all blood tests. Looking forward to feeling more energetic and life improving over a "simple" condition such as poor iron.<br /><br />I would encourage anyone who needs these infusions to get them, but make sure they do the test dose and dont let them rush you. Even after the test dose, let them know you are apprehensive and ask them to run it slower, like over 30 - 40 minutes instead of 15 - 20 minutes.<br /><br />Good luck!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-38362058728935257162011-12-16T06:24:39.685-05:002011-12-16T06:24:39.685-05:00I have low ferritin counts for no apparent reason-...I have low ferritin counts for no apparent reason--tried oral supplements with no help. I have had about 6 infusions of ventrix, with some discomfort, which was ameliorated with dilution and longer times and also warm packs and benedryl. I have these due to restless leg syndeome. which is aggrevayed by the infusion. All in all, I am thankfuk to have them/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-56121462459104146722011-10-13T04:13:48.710-04:002011-10-13T04:13:48.710-04:00For Tracy:
I had a gastric bypass in 1999, have bo...For Tracy:<br />I had a gastric bypass in 1999, have both an iron and a B-12 deficiency. I get my B-12 shot every month and take iron tablets. two surgical procedures, I had blood transfusions,my HGB was 6. T January 2010,i had surgery,and felt horribly tired.my doc told me I needed a transfusion,another said no and sent me home.i went back for a recheck,the nurse practioner was looking at my labs for the past 6 months and saw my HCB counts fell from 12 to 7. I went to a hematologist,he did a complete panel on me.I was exhausted I could sleep night& day. craved spinach,crunched on ice,short of breath,depressed, my memory was foggy, restless legs, sores in my mouth, night sweats, horrible cramps in muscles & the worst bone pain.hard to walk up steps.afraid to drive because I was sleepy,rapid heartbeat, cold hands and feet. I got my ferritin level back, it was barely a 4, my B-12 was 200,& my red blood cells were small! No internal bleeding,had a hysterectomy in 2001.my hematologist started me on Venefer infusions once a week for 6 weeks & B-12 injections every two weeks for 2 months, then down to once a month.my HGB hit above a 12,I got the Venefer about once a month for 2-3 months.I came to clinic for B-12 shots every month. We checked my HGB every week & it rose from 6 to 12& stayed there.the B-12 shots went to 1 every 2 months or so.I had to have a Port-a-cath put in,my veins were too small&couldn't handle the Iron.One month after I started the Venefer, I had a port put in. It failed & had to be replaced twice now. My hematologist wanted to stop teatment as he felt I may be stable,in April 2011, I received my last Venefer infusion (port #2 had to be replaced in May)and my last B-12 shot was in June 2011.In the meantime,in March 2010, my husband deployed again for a year this time.I was tired juggling the upkeep of the house, a teen and depression on top of feeling horrible!I know how you feel!He came home in February 2011, slowly over time the symptoms are back again.I told my doctor that I didn't want to wait until I was sick again. He told me my ferritin has been holding at 23 for several months (after dropping down from a 90),but he wanted to check my labs again.Monday this week, my B-12 is back down to 200, my Ferritin is at 7, my HGB is at 11. he is very puzzled as to why there has been a steady drop in my numbers. Monday I got loaded up on Venefer, and a B-12 shot. My next B-12 will be in 7 days and two weeks from Monday I will be back in for Venefer.he will check again in one month to see if the Ferritin is starting to come back up.Side effects? Heck ya! The worst is the first couple of days. Headaches, severe muscle cramps, bone pain in my legs and hips, restless legs, and the worst abdominal on the upper right side and right mid-back pain ever.Today is day 3 post Venefer, and if I STILL feel bad, i will be going back to the Nurse practioner.all of the side effects are going to be worth feeling better again. what other choice do I have.one day the doctor will find out why my bone marrow can't keep up with the production of healthy red cells, and iron storage, until then, it is what it is as my son tells me. I hope things are better for you as well. take care!Roxannenoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-32364669144154414122011-08-23T17:47:00.686-04:002011-08-23T17:47:00.686-04:00Hi, I had an iron infusion yesterday. I'm not ...Hi, I had an iron infusion yesterday. I'm not anaemic but have had gut problems, depression and chronic fatigue for some years. I've had many tests and attempts to find the causes and none have been successful. One thing that is persistent is that my iron levels are low and don't move up with oral iron. <br /><br />Yesterday, I had 4 hours on the iron drip and no side effects. It takes 2-3 weeks for the iron to go in to the ferritin stores (and then actually make me feel better). I am told if it works it lasts a 'few years' and then you can have it done again if needed. <br /><br />In preparation for the infusion - I was told to take 3 types of anti-histamines and a day before and for 3 days after, then they give some type of drug in the iron infusion to help the body accept the iron. <br /><br />I think if you are sensitive to any types of drugs it pays to check if any reactions are to the iron or to the other drugs they administer at the time. <br /><br />I've written on this blog because I've just spent a good hour trying to find some good info on iron infusions and I can't find it!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-77143987971682667942011-08-19T06:19:47.843-04:002011-08-19T06:19:47.843-04:00My iron level came to 33. n d doctor has suggested...My iron level came to 33. n d doctor has suggested 3 doses of IV iron infusion, over a period of 1 week. I dose has been taken. Are 2 more required?? Is der any other alternative??<br />If nebdy has ne idea.....xyzhttps://www.blogger.com/profile/04922078890027041796noreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-47291287951309621482011-08-15T21:00:01.431-04:002011-08-15T21:00:01.431-04:00I too was diagnosed with pernicious anemia back in...I too was diagnosed with pernicious anemia back in the 80's and in the last few years with with iron deficiency anemia. I recently saw a hematologist who told me I am as anemic as you can get. She mentioned possible infusions down the line. My primary doctor who I've had for many years checked my levels after a month and found no change so he recommended infusions. My first appt. is tomorrow and up until reading the posts here I figured it was not going to be too bad. Boy was I surprised and am now worried about possible side effects. I already feel like I'm a medical book with the anemias, diabetes, thyroid, epilepsy, asthma,chronic bronchitis, enmpyzema, and copd. I really don't need anything else/any complications. Like everyone I just want to feel alive. I'm gonna focus on the positive sides of treatment and hope for the best, Thanks all for the information you have provided.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-55012428002590689862011-08-06T13:37:38.353-04:002011-08-06T13:37:38.353-04:00I just got my first (hopefully only) infusion of I...I just got my first (hopefully only) infusion of Infed. I too, was scared after reading the possible side effects. My total appointment lasted 8 hours. I was first given 50mg of benadryl, and 10mg of dexamethasone (steroid) by IV, and 1000mg tylenol by mouth. I would like to first preface the following with the fact that the nursing staff was absolutely amazing. I had never experienced such sincere compassion and maternal comfort from any healthcare professionals, ever. So the benadryl and dexamethasone took about 10 mins to infuse. The only side effect I had during the whole procedure was my forearm started to burn and itch a bit shortly after she ran the benadryl. She said to not worry, as my veins are not used to having something run into them. She added an extra bag of saline and wrapped my arm in a warm blanket and within about 30 seconds the burning/itching subsided. She warned me of the infamous "benadryl coma" my response was that benadryl doesn't really make me sleepy. Next thing I remember is being woken up for my test dose to confirm my name and DOB which was done each and every time anything was administered to me. I quickly fell back to sleep and was woken by the beeping of the IV pump to let them know the test dose was done. I then had to wait an hour to see if a had any adverse reactions. I again fell back asleep. She woke me again to confirm my info and start the large bag of what looked like blood. I was then given another warm blanket to keep warm, and a tuna sandwich and a coke. From then on it took 6 hrs. Because she was running extra saline I had to urinate about every hour, other than that it was a piece of cake. It's now 18 hours later and the only complaint I have is I had very minor pain in my right femur, I took 2 aleve and that knocked it out. I'm going to be 30 in november and I have never felt more alive. I'm breathing better, my balance and train of thought is better. I know people say it takes a while to notice the diff but I noticed immediately. The nurse even made mention that I had color in my face lol, which I have never had. I would recommend this to anyone who has any sort of severe anemia.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-87974374069175210792011-07-19T21:50:01.848-04:002011-07-19T21:50:01.848-04:00I'm so glad I found this blog on IV iron infus...I'm so glad I found this blog on IV iron infusions. I have an appointment on Friday to see the hemotologist (sp?) and then after my visit I will receive the infusions. I went online and researched the side affects and they scared me to death. I have been a nervous wreck all evening. I have a phobia of vomiting and I read that is one of the side affects. I even considered not going to my appointment.<br /><br />I still have not made up my mind if I'm going to take the infusions, I'll see after I speak with the hemotologist.<br /><br />I do feel a little better after reading some of the comments here. I do not have a problem with gluten my anemia is caused from malabsorbtion due to bariatric surgery 6 years ago.VCloudhttps://www.blogger.com/profile/15841724830622385077noreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-27763952371060655742011-07-19T21:41:46.158-04:002011-07-19T21:41:46.158-04:00Looking for info about breastfeeding and IV iron. ...Looking for info about breastfeeding and IV iron. I had IV dextran today and before I arrived I asked about nursing and the infusion and they didn't mention that it would be a problem. Then I arrived and none of the pharmacists, docs or nurses could answer for sure. Anyhoo, still searching for an answer-pumping and dumping til further notice...<br />Went in @ 9:30am to the hematologist/oncologist. Told too anticipate a 6 hour appt. Seen promptly. Received very thorough form that was reviewed by nurse that covered informed consent- it mentioned ALL of the potential side effects folks mentioned. Put into a room with two reclining chairs. IV was started by a wonderfully experienced nurse. She gave me 1000mg of tyleneol by mouth, then 50mg of benadryl in a small IV bag, then received pepcid in a small IV bag (for stomach issues), followed by an IV push (straight from syringe into IV line) of methylprednisolone (prednisone) to help with reaction plus muscle aches and pains. All of these meds are administered to (hopefully) prevent some of the nasty side effects. Others have mentioned that dextran is the cheapest option, and pretty much all of these drugs are relatively inexpensive- so likely a cheaper option/cocktail of meds to go along with the dextran. Received my test dose of dextran- my blood pressure dropped significantly- but that could have been caused by benadryl. They stopped test dose to monitor the BP a couple more times and it didn't go any lower and I was never symptomatic, so they restarted. Waited for test dose to end, monitored vital signs 30 more minutes then began regular dosage. Most anaphylactic reactions happen immediately if they are going to happen, so likely I was in the safe zone at this point.<br />Got sleepy after benadryl. Started the big bag- which was run in over 4 hours. The pre-meds and test dose took almost 2 hours. <br />All patients are shown how to unplug their IVd and get to the bathroom- which I did quite a few times.<br />Towards the end of the day I started to get a little warm- but not sure if that's b/c it was warm there, pregnancy hormones (i gave birth 4 weeks ago), or iron. After the big dose, I got another dose of methylprednisone IV push. She unhooked and I packed up.<br />As I was coming home I got a raging headache. I hadn't had much to drink so not sure if that was the cause. Took more tylenol @ home and it helped. Then started drinking lots of water. Had one small bout of diarrhea- but that could have been chance or related to any of the meds. Nothing recurred yet and it's been 5 hours.<br />In hindsight, I should have brought more to drink and something to snack on. They had crackers and water! I was famished which ALSO could have attributed to the headache.<br />According to what I read, you can still have side effects for days, but I'm hoping the meds will help mitigate those over the coming days- and taking more tylenol.<br />I'd encourage you to ask your doctor about a good cocktail of meds to take- though as some have mentioned not all IV iron is created equally- so you won't have as many side effects with some as with others. Here's hoping that I don't have any major side effects in the coming days. Still looking for info on breastfeeding and IV dextran. Have a call into pediatrician, I'm stuck pumping and dumping and formula til then. <br />Hematologists office (besides, telling me to consult the pediatrician) said was it's classified as L2 on some pregnancy scale. They only have details for injections into a muscle- which indicates it takes up to 3 day to be absorbed and 3 weeks to be fully excreted. Safe would be pumping/dumping for 3 days. Safest would be 3 weeks. BUT that isn't necessarily the same for IV dosages- which they admit, but don't have an answer for. The half life for IV dosages is 6 hours with full excretion typically in 18 hours. Soo...hopefully I hear back from the pediatrician tomorrow and am not stuck pumping and dumping for 3 days. TMI for most of you BUT in case someone else is looking for this info...jcrowdernoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-74261540025946896302011-07-02T11:49:40.768-04:002011-07-02T11:49:40.768-04:00hello all and I am happy to have this blog so I do...hello all and I am happy to have this blog so I dont feel like some sort of freak - I suffer from pernicious anemia and iron deficency anemia and was just not feeling well for about a year but nothing too notable to think things were as serious and dangerous as it was - thankfully I got in a very serious car accident that led to my very detailed oriented nurse practicioner to realize I had some major issues - after three days in the hosptial they came up with my double anemia diagnoses - I had IV iron injections for 5 days in a row every other week when my treatment started and it was AWFUL - I started in Infed and had a very very severe reaction to it so they switched me to Ferrlicit which I tolerated much better. I know after 6 months am still on injections every other week but now its only one day and takes about 3 hours - the day of the injection I am basically a zombie and sleep away most of the day until I wake up sweating alot and in pain as if every joint in my body is on fire - so I have to take Lortab on a fairly regular basis - my levels are still not normal and they dip dangerously low despite my injections - the pain comes from the IV iron casuing your bone marrow to activate to create iron storage and that causes the joint pain - for me this pain is amazingly awful - having a sheet on my body hurts - the Lortab I am on is no longer combating the joint pain so I have to ask my Dr for stronger meds and it makes me feel like some sorta junkie - so my Iv injections coupled with weekly self injected B-12 have me feeling "better" but not great. I know this takes time and I know things could be worse but this will be an issue for the rest of my life and it gets me down to say the least - some of my co workers hate me now cause they think I am "faking" to get extra time off work even though my HR dept has me on Americans with Disabilites leave so I have two days a month to call off without getting in trouble - its great but sometimes two days isnt enough but I dont want to loose my job so I go into work on days that I just want to stay home highly medicated - this has not been a fun journey but again there are worse things in life to have -I wish you all the best in your fight against anemiaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-1652483687358047662011-05-18T08:48:21.427-04:002011-05-18T08:48:21.427-04:00I had my fist iron infusion 3 days ago. After read...I had my fist iron infusion 3 days ago. After reading some of the side effects I was really nervous about going. I guess there are different kinds of iron infusions mine was a feraheme infusion. This required no test dose. the nurse put in the iv and then injected the iron all at once. Then I had to wait an hour to make sure everything was ok.I felt fine no side affects at all doctor said it would take a little time before I see a difference in my energy levels.I'm glad I went looking forward to feeling better.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-49452688385588859402011-05-01T21:01:58.204-04:002011-05-01T21:01:58.204-04:00My 3 year old daughter has battled iron deficiency...My 3 year old daughter has battled iron deficiency anemia for 2 years. After 9 months of 60mg iron orally a day, her numbers went from 11 to 13, and then down to 3%. She got her first dose of iv iron dextran last week and she was tired and pale following the infusion. Later that night she started with muscle aches, headache, slight fever, and personality changes (combative and down right rude/mean - not her usual self at all). This lasted for about a day and a half, then she was back to normal. We are in the process of testing for multiple autoimmune diseases (she has 3 high ana titers) so I hope these infusions will help the anemia. She has two more over the next 10 days. Dispite the mild side effects, I think it is worth it. Hopefully over time they will lessen (she will have these forever).Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-21545359715767212532011-03-02T20:21:10.474-05:002011-03-02T20:21:10.474-05:00Does anyone know if the "Iron Dextran" I...Does anyone know if the "Iron Dextran" IV treatment is gluten free?.JOHN WALLACEhttps://www.blogger.com/profile/01777758207354863997noreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-6849521169834975302010-10-19T20:10:01.821-04:002010-10-19T20:10:01.821-04:00I have been getting Venofer since Jan 2010. At my ...I have been getting Venofer since Jan 2010. At my first appt. my hemotologist told me that he was suprised that I was sitting there in front of him- he had never seen levels as low as mine. (lab was unable to calculate) He said that if there had been anything wrong with my heart/lungs- I would have died from a heart attack or stroke! I was extremely upset- I had gastric bypass TO PREVENT dying from a heart attack/stroke! Long story short...gastric bypass is the cause for my anemia. I have been reading the posts on here. I feel so badly for those of you that have had adverse reactions from the infusion. Fortunately, I have not had any with my infusion. We are still trying to get my infusion frequency right.At first I received it weekly(12 weeks)-then the insurance would only approve 8 weeks intervals(terrible! DRagging- unable to walk up short flights of stairs-WEAK and most of all depressed!) then 6 wks-again- felt well for 2-3 weeks-then it was back all over again!Now I am at 4 weeks. hopefully I won't "bottom out" so badly. I have a 3 year old...so It is not easy. My quality of life is not very good. I also have a weird thing going on. When my iron is low (and I experience all the bad symptoms) my heart rate is LOW. (unusual, I know!) Low- I mean 30-40's. Pass out, etc- along with all the other symptoms. So, NO driving, etc. As I said- greatly effects my quality of life! My husband is in the Army-hardly ever home at his assignment now (Sunday's if we're lucky) and is about to deploy for 12 months! Deployment at any time, stinks! But feeling so unwell most of the time is scarey-and to be ALONE for 12 months ontop of it!It is going to be a LONG year.. The cardiologist is talking pacemaker now...<br /><br />Has anyone had this happen??<br />Thanks for your time!Tracy~noreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-33903499472556253622010-06-22T20:34:48.206-04:002010-06-22T20:34:48.206-04:00I have been getting iron intravenously for the las...I have been getting iron intravenously for the last 4 years. I am unable to absorb iron through the stomach due to a bleeding ulcer years ago. After the first year I had a port put in because my veins couldnt hold up to the constant poking. After I have it put in I usually last about 6 months. With appointments 3 times a week for a total of 10 settings. This time I asked if I could get larger doses so I wouldnt have to go in so much. I only had to go twice, but each dose took 4 hrs. This is a lifetime thing for me but getting a port put in was the best thing I ever did. I have never had any side effects from the infusions, but have a lot when the ferritin level gets low. They monitor me closely so it never gets to the point where I am anemic or my hemogloben level drops. I wish I could say having this done really helps me feel better, but not having it done is not an option for me.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-77445157198001044112010-06-22T20:33:56.590-04:002010-06-22T20:33:56.590-04:00I have been getting iron intravenously for the las...I have been getting iron intravenously for the last 4 years. I am unable to absorb iron through the stomach due to a bleeding ulcer years ago. After the first year I had a port put in because my veins couldnt hold up to the constant poking. After I have it put in I usually last about 6 months. With appointments 3 times a week for a total of 10 settings. This time I asked if I could get larger doses so I wouldnt have to go in so much. I only had to go twice, but each dose took 4 hrs. This is a lifetime thing for me but getting a port put in was the best thing I ever did. I have never had any side effects from the infusions, but have a lot when the ferritin level gets low. They monitor me closely so it never gets to the point where I am anemic or my hemogloben level drops. I wish I could say having this done really helps me feel better, but not having it done is not an option for me.Rhondanoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-12048585562820212392010-06-02T04:40:34.929-04:002010-06-02T04:40:34.929-04:00Just found out that my 3 yr old's Ferritin lev...Just found out that my 3 yr old's Ferritin level is a 6. Dr wants him on 90mg's of Elemental Iron for the next 3 months. We can't afford the Iron over the counter, so not sure if I should push the IV Iron route? Any thoughts or suggestions would be great.Meteor magnetshttps://www.blogger.com/profile/04894417832207436422noreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-87432386661597400152010-02-14T16:50:56.124-05:002010-02-14T16:50:56.124-05:00I am 30 weeks pregnant, and have been anemic most ...I am 30 weeks pregnant, and have been anemic most of my life. The dr's tried me on 65 mg tablets 3 times a day but they were making me so sick so I am supposed to have my first iron infusion on Friday. Has anyone else had them while pregnant? What are the risks to the baby? If something goes wrong and i end up in anaphylactic shock what damage will that do to the baby? I am worried, but also know they can't get my iron up any other way. ThanksUnknownhttps://www.blogger.com/profile/09814275052158319872noreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-81903444376156148552009-12-17T06:57:26.196-05:002009-12-17T06:57:26.196-05:00After 2 useless years of ferrous sulphate, which d...After 2 useless years of ferrous sulphate, which did nothing, I had a CosmoFer iron infusionover seven hours. No problems but sadly, after several weeks I feel no better. Only problem is continual itching which I had with the ferrous sulphate and which is still driving me mad. If "let them (not) eat cake" can help with a cure I'd be grateful. The leaflet says it will cure itself "spontaneously" but doesn't say whenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7511121444223942732.post-14765791375282148592009-10-20T14:00:29.163-04:002009-10-20T14:00:29.163-04:00Hello!
My iron lvel was at a 2. I did my first tre...Hello!<br />My iron lvel was at a 2. I did my first treatment on Friday the 16th and my second treatment on Monday the 19th. I have my 3rd treatment on the 23rd. Each time it took approximately 1 1/2 and it was very easy and i had no side effects. I am looking forward to some energy and some well being. I am hoping to feel some relief in the next few days. Does anyone know when i should start seeing some changes in energy?<br /><br />Thx!<br />SheilaAnonymousnoreply@blogger.com